She is our dream come true and the greatest gift
we have ever been given.
Update - February 12, 2014
Wasn't But Is
Yesterday 7 children died from cancer.
…my child wasn’t one of them.
Today 7 children will die from cancer.
My daughter is one of them.
She gifted me her first and her last breathe…
and so many beautiful ones in between.
JLK was diagnosed with DIPG on her 6th birthday. Click here to find out more about DIPG. Keeping reading to find out more about our little girl.
Her particular tumor is inoperable and has no cure. The prognosis is 9 months. Jennifer is currently undergoing radiation treatment to lessen the symptoms she experiences and improve her quality of life for the time she has. We are hoping to get into the right clinical trial to extend the time even longer...and if not then give her a lifetime full of experiences and our family time together while still being able to pay the bills...Both while she is here with us....and after to re-build as a family of 5.
Jennifer Lynn Kranz was born on October 28, 2007 at 4:38pm. She weighed 7lb 8oz and was 19.5 inches long. It was a long road to find her filled with miscarriages, IVF and failed adoptions. But I was the first to hold her and got to cut the cord. As Jennifer says, “It was the day we went from being Tony and Libby to Mommy and Daddy.” She is our dream come true and the greatest gift we have ever been given. Also, the 16th grandchild of Bill and Mary Scharrenberg, lovingly nicknamed ‘Baby Jennifer’
“I didn’t give her the gift of life, rather life gave me the gift of her.”
From the beginning JLK seemed to have “gut issues”. After exhausting all the less invasive options at a little over two she had a colonoscopy and endoscopy and was diagnosed with celiac disease. Simply put it’s an autoimmune disease that means she cannot consume any gluten. We saw immediate improvement, she gained weight and shot up nearly 1.5 inches. Although she took to being gluten free like a champ, she did struggle with not getting to have the same birthday cake as the other kids. I struggled too as it was a whole lifestyle overhaul, even down to shampoo (our girl is a bit of a hair chewer!). If I am being honest I complained a lot more than she ever did…she just accepted it and lived it.
To write about who Jennifer is I have to include her 3 younger siblings. I think God knew I wouldn’t be able to raise all these kids without some help so he gave us Jennifer first. Jonathan, age 4 and JLK share a room and are the best of friends, I love the sound of them giggling and talking at bedtime. When Jonathan gets hurt he often runs to “sissy” while knocking Dad and I aside. Nicholas is 2, we call him “Bubbas” a nickname coined by Jennifer. He is one tough cookie and adores his big sister so you better not mess with her when he is around. And 5 months ago her little sister joined our family. When Charlotte was born JLK came running up to my bed and asked, ”Is it a girl mommy? Is this my sister? Is it Charlotte?” She wanted a sister so badly and I was so happy we got to give that to her and give her to Charlotte.
Although the odds are not in her favor, she is a little girl born to be a mother and I hope with every ounce of my being she gets that opportunity.
Blowing out her candles at her 6th birthday, the day after being diagnosed.
Always the silly girl!